Look forward to something

When ever I got in a funk, my mom would tell me to find some thing to look forward to.  It always worked.  Now I feel like I am looking forward to my next infusion.  Every 3 weeks.  I am looking forward to it.  That is good. 

There are people with CIDP who experience a time when Ivig stops working.  There are people who experience horrible side effects after years of being on Ivig.  When I see these stories, I get scared.  I just push it out of my mind when it happens.  Then I have dreams about my kids drowning or dreams that all of my teeth fall out.  That is when I know I need to make a plan or have an idea about what we would do then.  There are also people with CIDP who have stem cell transplant.  Most of them are doing well.  It wipes out their immune system and sort of resets it. It is still experimental.  I am not there yet. 

There are things I am looking forward to.  This time last year the only thing I was looking forward to was an appointment with a neurologist.  I guess I am getting somewhere.

I have been working with a new physical therapist who was doing a rotation with my beloved PT.  She presented my case at her final meeting with the people who are overseeing her rotation.  Most had not heard of CIDP.  I am glad to have met her and I am glad that they know about this illness. 

I am looking forward to my mom visiting.  I am looking forward to the holidays.  I am looking forward to another infusion.  I am looking forward to getting my infusions moved to home.  I am looking forward...